HNRNP Family Foundation
Bridging rare disease research and families through compassionate design
When a family receives a diagnosis of an HNRNP-related neurodevelopmental disorder, they often face one of the most disorienting moments of their lives with very few resources to help them make sense of it. The HNRNP Family Foundation exists to change that, connecting families to each other, to researchers, and to the growing body of science around these rare disorders. Mithril built a website worthy of that mission: a deeply resourced, compassionate digital experience that meets families exactly where they are and walks them from the moment of diagnosis toward understanding, community, and hope.
Web Design · UX/UI · Development · Donation Integration
Visit siteWhat we built
Modern UX with intelligent scroll interactivity making the website enjoyable to visit
Wide breadth of information, highlighted by a built in glossary that helps users identify key terms about these disorders on every page with inline tooltips
Detailed resources for every disorder including links to research papers, helping users better understand each disorder
How we got there
The Problem
- Lack of resources available to families who have received diagnosis, leaving them on their own to understand what they are up against
- No integrated donation workflow, making it difficult for users to support the organization
- Disconnect between the science and research audience and newly diagnosed families
The Solution
We designed a site architecture that bridges two very different audiences: families navigating a new diagnosis and scientists engaged in active research. A custom inline glossary was built so that clinical terminology throughout the site automatically surfaces plain-language explanations, removing one of the biggest barriers for newly diagnosed families. Dedicated disorder pages were created with structured resource libraries, links to peer-reviewed research, and clear pathways to community support. A native donation workflow was integrated directly into the site, making it easy for supporters to contribute without leaving the experience. Scroll-driven interactivity was woven throughout to make dense information more approachable and the site genuinely enjoyable to explore.
The Results
- Real-world impact for families going through the diagnosis process
- Improved search engine placement for key disorder terms
- Increase in in-person event registrations
“Working with Kyle was a dream come true, he listened and delivered quickly. He took the time to understand our mission as rare disease non profit and worked magic to make complex medical terms seem less confusing. Our org has gotten feedback that our website is the best they have seen in our field, which was all Kyle!”Leila Margolis, Board President
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